Rheumatic Reading List April 2021
Each month we like to compile a list of all the rheumatic themed articles and studies we find.
Our hope in compiling this list is to help you become educated on your illness so you can advocate for better care in our complex healthcare system.
Learning about Rheumatic Autoimmune Diseases: Common Questions About These Diseases (Part 1 of 3).
This articles has answers to some of the most common questions about our diseases.
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Wellness Warrior: Kelly Roseta From More Than Lupus.
Kelly shares her personal diagnosis story along with what inspired her to publish her very own children's book to help parents with Lupus.
How my chronic illness shaped the pandemic for my kids with the family under extra isolation, my children yearned for freedom.
This post is beautifully written and shows just how hard this pandemic has been for chronically ill parents during this pandemic.
We too have experienced the mischief and meltdowns. Worth a read for anyone who has patented children during this difficult year.
Out of step: Life with lupus and learning how to walk again.
"My brain gradually shut down until I barely remembered my name and had no control over parts of my body."
“The breakdown of my mind shocked me, but the breakdown of my body had been continuing. For the past four years, I had lived with lupus, a chronic illness whose symptoms are so mercurial that the graphic designers tasked with raising awareness had given up and used a giant purple question mark as the logo.”
Research and Studies
Gene Variant May Increase Lymphoma Susceptibility in Young-onset Sjögren’s.
Scientists Make Tiny Lab-Grown Tear Glands Cry.
The tear-producing organoids researchers created could one day help relieve medical conditions that cause dry eyes.
A case of Sjögren's syndrome with worsening of pleural effusion due to steroid discontinuation.
Lupus patients with lower vitamin D levels more likely to have metabolic syndrome, insulin resistance.
New study uncovers potential therapeutic target for lupus.
Effectiveness and Safety of Iguratimod in Treating Primary Sjögren’s Syndrome: A Systematic Review and Meta-Analysis.
Free Worksheet - Preparing for your Rheumatologist Appointment
As a follow up to the 7 Tips On How To Prepare For Your First Rheumatologist Appointment blog post.
We created a free worksheet that you can use to help get prepared and organized before your next appointment.
Hint - anyone can use this worksheet whether it is your first appointment, or have been a patient for many years. This free worksheet can help you!
You can get a copy of this worksheet by visiting our Free Resources Page.
We hope this months reading has left you with a lot to think about.
Warriors, we want to thank you for sticking with us and continuing to learn, grow and be inspired to live your best life with a chronic illness.
Wishing you Health and Happiness,
Heather & Marc 💜
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